Trailer À Mercies in Disguise: A Story of Hope, a Family's Genetic Destiny, and the Science That Rescued Them PDF by Ù Gina Kolata If I could rate this book a 10, I would This is honestly the best book I have read in quite sometime It is an incredibly personal and honest look into a family s life dealing with a devastating and terminal hereditary disease that few doctors know anything about And how their journey has led them to do anything and everything they can to fight back, no matter how diffult or controversial it may be.
New York Times Science Reporter Gina Kolata Follows A Family Through Genetic Illness And One Courageous Daughter Who Decides Her Fate Shall No Longer Be Decided By A Genetic Flaw The Phone Rings The Doctor Has The Results Are You Ready, Amanda The Two People Amanda Baxley Loves The Most Had Begged Her Not To Be Tested But She Had To Find Out If Your Family Carried A Mutated Gene That Foretold Brutal Illness And You Could Find Out If You Inherited It, Would You Do It Would You Confront It, Accepting Whatever Answer Came Or Ignore It While You Could In Mercies In Disguise, Acclaimed New York Times Reporter And Best Selling Author Gina Kolata Tells The Story Of The Baxleys, An Upstanding Family In Small Town South Carolina Many Of Them Were Doctors, But Still, They Are Struck Down By An Inscrutable Illness Finally They Discover The Cause Of The Disease After A Remarkable Sequence Of Providential Events Meanwhile Science, Progressing For Years Along A Parallel Track, Handed The Baxleys A Question Not A Cure But A Blood Test That Would Reveal Who Had The Gene For The Disease Science Offered Another Dilemma Fertility Specialists Had Created A Way To Spare The Children A Work Of Narrative Nonfiction In The Tradition Of The The Immortal Life Of Henrietta Lacks, Mercies In Disguise Tells The Story Of A Family That Took Matters Into Its Own Hands When Medicine Could Not Help It S A Story Of A Family Dealing With Unspeakable Tragedy Without Being Driven Apart It Is The Story Of A Young Woman Amanda Baxley Who Faced The Future, Determined To Find A Way To Disrupt Her Destiny A spellbinding story of a family caught in the web of a fatal genetic disease Well written and intentional in content It made me thankful my children do not have to have their lives suspended like Amanda s family does.
It s an okay book.
Absolutely one of the most inspiring biographies I ever read Right in my hometown.
Always knew I was living a dream And then I read this It makes me even grateful and aware of good health.
A compelling story of courage and resilience told masterfully by an incredibly gifted writer with great insight into the human condition This is an inspirational story about normal people, who when faced with a horrible fate showed that they could rise above it and show us what genuine heroism really is While it deals with a complex disease, the writer carefully explains its aspects in language that most anyone can understand and appreciate.
A fantastic telling of a horrible story and a horrible disease It takes real guts to share this experience and Gina does a great job of weaving the narrative in a way that keeps you reading It was hard to put down.